So, here is my first blog.  I dunno, maybe this isn't the best day to blog as I am in sort of a depressed mood.  I'm tired of having this disease and what it does.  No body 'gets it'.  I'm so sick of hearing all the comments about how 'lucky' I am.  Bullshit!  Tell me I'm lucky to no be able to work and have some sort of value.  Oh, but 'you've come so far'! Yeah I know but I just want to be 'normal' and good at something!  How many times can I be turned away, or told that I'm just not fast enough, good enough, on and on.
Yes I did come out of the wheelchair, no I'm not using a cane anymore, yes I look 'normal' to others who don't or can't see the real inside.  You don't see how my right leg is smaller than my left due to muscle wasting, how it buckles when I'm trying to work out, how it drags when I'm tired.  How about how I don't have good bladder control, and practically pee my pants when I walk (!) in the door. How my whole right side is 'less than'.  And I can't do a damn thing about it!

And then I turn around and look at what I CAN do, not what I can't, and I feel a little better.
So, let's look at the positive.
I'm NOT in a wheelchair
I DON'T have to use a cane
I CAN stay home to raise my daughter.  However that is a tough one as she is 13 and at that age where maybe I want a job to just get out of the house!

Now I must do my 'motherly duty' and go pick her up from school! Oh yippee!!